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Metro NY
National Cancer Institute

Young Women’s Study

We are recruiting women to join the Young Women’s Study, the newest expansion of the Breast Cancer Family Registry / Metropolitan New York Registry. Watch this brief video to learn more! 

Why young women?

Breast cancer incidence globally has been increasing among women under 40 years old. However, young women are not often included in cancer research studies in large enough numbers to be able to detect factors that may increase or reduce their risk of cancer.

The Breast Cancer Family Registry Young Women’s Study is the first major breast cancer research study with a specific focus on recruiting women under 40. Over time, we will collect health information and biological samples that will be used to study how genes, lifestyle and our environment may be protective factors or risk factors for cancer in young women. We invite you to join the Young Women’s Study and become the next generation of women who will play a powerful role in our collective understanding of breast cancer!

 

What is involved?

New participants must complete an online e-consent form to enroll in the Young Women’s Study. Study participation involves the following activities. All aspects of the study are completely voluntary.

  • completing online questionnaires over time
  • providing a biological sample (saliva, blood, and/or urine)
  • using mobile phone apps to track your menstrual cycle and physical activity
  • if applicable, providing medical release authorization for your study site to obtain a copy of breast MRIs, mammograms, pathology reports and/or tissue from breast and ovarian surgeries

 

Eligibility Criteria

  • female
  • ages 18-44
  • relative of a member of the Breast Cancer Family Registry

 

Interested in joining?

If you are interested in joining the Young Women’s Study, please complete this interest form and a Research Coordinator will reach out to you with more information and to answer any questions you may have. You also can email any questions to metronyregistry@cumc.columbia.edu or call 212-853-7386.

If you are a current MNYR study participant and you would like to refer a young woman relative to join the Young Women’s Study, please email metronyregistry@cumc.columbia.edu or call 212-853-7386.

 

Checkout our BCFR Website!

BCFR Logo

The LEGACY Girls Study

Parents from this Registry are also participating in The LEGACY Girls study with their daughters ages 6-17.

Publications

Read highlights from recent publications utilizing BCFR data from the New York site.

Contact Us

Help us stay in touch with you and your family members by keeping us up-to-date with your phone number and mailing and email addresses.

The Metropolitan NY Registry of Breast Cancer Families
Mailman School of Public Health, Columbia University
722 West 168th Street, 7th Floor
New York, NY 10032

Phone: (212)304-6433
Toll-free: 1 (855) 34-FAMILY (1-855-343-2645)
Fax: (212)544-1907
email: metronyregistry@cumc.columbia.edu
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