Please help us stay in touch with you and your family members by sending us updated contact information including addresses, phone numbers and emails.
Our local phone number is 212-304-6433 and our toll free number is 1-855-34-FAMILY (1-855-343-2645). You can also contact the Registry by email at firstname.lastname@example.org
Due to the COVID-19 pandemic, our research team is working remotely and responses to voicemails left on the main Registry phone number may be delayed. You can reach our Research Coordinators directly at the following phone numbers.
Rachel Sweeden: (212) 853-7387
Melissa White: (212) 853-7385
Sarah Lima: (212) 853-7386